After being cured from a genetic defect, my baby died of SIDS
My son, Linkin, was born on November 7th, 2012. Very soon, they found out he had low blood sugar and they had to give him glucose. We were assured this was common in large babies (he was 9 lb, 6 oz) and he should be able to come home soon. Well, he wasn't able to wean off the glucose and had to be transported to a regional hospital via ambulance. We have 3 other little girls at home, so this was a traumatic time for everyone. We were at the regional hospital for 2 weeks before they recommended going to the children's hospital of Pa. We are in Utah. We had to leave our 3 little girls with my parents in Utah & fly across the country with our baby to Philadelphia for 4 more weeks while we underwent surgery and had a 50% pancreactectomy (he had hyperinsulinism). After the surgery, he recovered so quickly & was completely cured!! We were able to surprise our entire family by taking him home for Christmas. Such JOY!
We had 2 and a half months of pure blissful happiness with our baby boy. His sisters ADORED him - countless kisses on his adorable cheeks - singing to him, dancing with him. It was just such precious time to finally be a family as it should be.
Then - on March 26th, 2013, I went to get him up from his nap to feed him & I found him face-down in his crib. I called 911, but there was really nothing they could do for him. He was gone.
The past 2 months have been horrific. To have him go through all that at the hospital and have him cured - just to lose him to SIDS! It has given me so much anger and sorrow. And to watch his sisters grieve for him is almost as hard as my own grief. I miss him EVERY single day. He's left such a huge hole in our family and sometimes I wonder if it will ever be filled.