In June of 2008, we thought we had it made. His AAA was repaired and although he was SSDI for back and neck injuries we could get by. Early October 2008, I came home to my husband. He acted as though he was angry at me. I asked him what was up and he said I had been ignoring him all day. Perplexed I got in front of him and laughingly thought this was a joke. The look on his face was serious and his face looked a bit contorted. I told him I just got home from work and then he asked 'well who is that woman in the other room?' It was my daughter. She was 23. I asked her if dad had been acting strange. She said he wouldn't speak to her all day and she thought he was just moody or in pain.
Off to the ER. Twelve hours later after xrays, blood tests and a CT scan, a young intern came to our bed and blurted out about the huge mass in his head. We hadn't had a doctor tell us anything.
A week later his first brain surgery confirmed a malignant GBM stage four brain tumor. Four surgeries, 27 trips to the ER, radiation, chemotherapy, infections, blood clots, steroids, glucose shots. All that I had to learn to do. Six short months and hospice. He passed away. I was lost. I soon had to ask for a loan mod to try and save my home. Ten months later the bank refused my loan mod request and foreclosed on me. I filed for bankruptcy. I was a mess. I didn't have time to grieve. I had to go back to work. Work was bad. He used to work there too, so everywhere I turned I faced it over and over. Then two years later his brain surgeons were found to be doing experimental things on GBM patients. All of the pain an grief came back. They ended up resigning their positions. It's now 2014, I just retired early because I cant get through a day of life without crying and falling apart. I'm depressed and sad. I don't have enough money coming in to survive and Social Security hasn't responded to me yet. I'm a wreck. Friends left, family is scarce. I feel completely alone. I'm in physical and emotional pain all the time.