Jack Francis Winterton 15/7/2011-21/4/2012 Aged 9 months- Australia
(Newcastle, NSW, Australia)
Jack was born on July 15 2011, 'healthy' and weighing 7lb 3oz. My waters broke at 1am (the same as his older brother) and he was born at 7:54am (the same as his older brother). He was 3 weeks early and I had a relatively good pregnancy. Jack was baby number 2 and being 20 months younger than his older brother.
Jack was jaundice at birth but nothing too concerning. Over the next 3 months the jaundice would come and go. Jack screamed/cried for abt 80% of the time. We thought we just had a 'screamer' baby. He enjoyed having his forehead rubbed in which it would settle him. Jack had his check up at the clinic and they said he was fine. His last check up (@ 6 weeks) I said to the midwife, the corners of his eyes are green, his poos are white and he cries all the time...he was also jaundice at the time. She didnt think much of it. Jack then went for his vaccinations and his doctor at the time said 'Is he jaundice?'. He looked in his eyes and said 'No...he's fine'.
When Jack was abt 10 weeks old we had a weekend of him screaming...quite different to the past screaming/crying. We comforted him the best we could. On the following Monday morning his abdomen was quite distended and I took him to emergency. He was diagnosed with Billary Atresia nearly straight away.
Jack and I lived in hospital. He was too sick to go home. He was always in pain- a never ending painful itch, diarreahea, vomiting, breathing complications- his liver and spleen were so enlarged it 'squashed' all his other organs, constant fluid in abdomen and always being drained, tube fed, daily blood tests and infusions, ultrasounds/xrays. He was on at least 20 lots of medicines daily, and they also had side effects. He rarely slept...due to his suffering. I would continue to hold him in my arms and comfort him night after night, day after day...massage the inside of his ears and head, scratch his body, give him warm baths. I rarely slept and became extremely rundown, physically and emotionally. I was watching my baby getting sicker and sicker and nothing eased his discomfort. I didnt even have the energy to cry anymore. I still had to get Jack through the days, comforting him with cuddles, songs, trips in the pram, baths, massages, playing with his toys, rocking him and changing his body positions.
We were told in January, when Jack went onto the transplant list that he would only have about 3 months to live without a donor liver. We thought that would be plenty of time. Easter of this year (2012) we were advised that he couldnt go much further than 2 more weeks.
Jack died at 2:36pm on the 21st April 2012 @ 9 months of age, 2 weeks after Easter....with no offer of a donor organ.
We are all still in shock and disbelief. We find it hard to believe that there was not a liver donated that would of suited Jack. Especially, with his declining health and being on the transplant list for so long.
Jack Francis Winterton 15/7/2011-21/4/2012
Safe in the arms of angels
"No one sees the broken heart that lies beneath my smile, No one sees the loneliness that's with me all the while,
Silent tears gently fall that others do not see,
For you are my precious Baby boy who means the world to me "