The good side of Community Hospice and how they gave life to my daughter.
by Joy Ruhe
(Glen St Mary, Fl)
First I think you should ask is your hospice a for profit or non-profit org. Kelli (my daughter) is in Community Hospice and non-profit hospice and from where I sit all their money goes to the care of the people they love, care and treat.
I say to all of you with your horror stories about Hospice You know, I was told by one of our Hospice nurses that we would most likely lose friends and family when Kelli entered Hospice. For many reasons like, they are afraid of death, it hurts to much to see their loved one decline, it reminds them that they too will die one day etc. But I didn't, couldn't believe it would happen to us. I am dumb founded by the lack of care that I am seeing. Maybe you are still there and just haven't made your self known, maybe you just don't know what to say, It hurts us both and it speaks volumes. So, back to my point if you were not there when your loved one died was it Hospice's fault or yours? i am sorry for all your losses. But Kelli has been in Hospice for 6 months and the level of care that she is getting has been amazing and better than any she ever has gotten before she entered Hospice. As her doctor said one "we are not the death squad". He is so right, Kelli is thriving (in her own way). Kelli may live another year or more though she is ready to go anytime. But it won't be Hospice that takes her it will be EDS/OI. My next post I'll tell you her story but for today i wanted to get this started. Blessing to all who read this, and to those who have lost and feel hospice is responsible being bitter and having regret will eat you alive and do nothing for the memory of your loved one. God Bless, Joy
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